Work
I know what it's like to work with people who are never sick. I know what it's like to feel misunderstood. When you have co - workers who can't help but question your being sick even though you look good, or something to that effect.
My co - workers go out on Friday night till 2 am and still get up to run a marathon. They don't understand that I come in to the office on Monday morning with sunglasses, not because I'm hungover but because I have cataracts ( I'm 34).
They see those posters about fatigue and think its a joke when it says you know what fatigue is whe you need to take a nap after having a shower, which is so completely true!
These co-workers don't understand that I work with a team of professional on a pain management plan which allows me to get into work in the morning. The plan involves more then one type of painkiller medication and it's always a work in progress.
I know what it's like to feel ashamed of your medicine cabinet, ashamed of taking time off work, ashamed to not know how to explain your illness and how you try everyday to make it into a good situation.
Working is only a piece of the battle of being normal, with surviving chronic pain that has no borders, fighting depression, doing daily tasks and not to mention all the time we spend at hospitals and appointments!
My co - workers go out on Friday night till 2 am and still get up to run a marathon. They don't understand that I come in to the office on Monday morning with sunglasses, not because I'm hungover but because I have cataracts ( I'm 34).
They see those posters about fatigue and think its a joke when it says you know what fatigue is whe you need to take a nap after having a shower, which is so completely true!
These co-workers don't understand that I work with a team of professional on a pain management plan which allows me to get into work in the morning. The plan involves more then one type of painkiller medication and it's always a work in progress.
I know what it's like to feel ashamed of your medicine cabinet, ashamed of taking time off work, ashamed to not know how to explain your illness and how you try everyday to make it into a good situation.
Working is only a piece of the battle of being normal, with surviving chronic pain that has no borders, fighting depression, doing daily tasks and not to mention all the time we spend at hospitals and appointments!
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